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Support Groups and Digestive Associations in USA

There are many organizations of interest to people with digestive disorders, in many countries. Here You will found some of them, including addresses and other contact information. If You know of other important organizations in Your country, please send an email!

Celiac Disease Foundation

    13251 Ventura Blvd, Suite 3
    Studio City
    California 91604-1838
    USA
    Phone USA 818-990-2354

Celiac Sprue Association

    P O Box 31700
    Omaha
    NE 68131-0700
    USA
    Provedes information and referral services for persons wiht celiac sprue and dermatitis herpetiformis and parents of celiac children.

American Celiac Society

    58 Musano Court
    West Orange
    NJ 07052

The Gluten Intolerance Group of North America

    P.O. Box 23053
    Seattle, WA 98102-0353
    USA
    The Gluten Intolerance Group of North America Offers assistance to persons with celiac sprue and/or dermatitis herpetiformis, their families and helath professionals.

Cincinnati Celiac Society

    Children's Hospital Medical Center
    Elland & Bethesda
    Cincinnati, OH 45229
    USA


Focus is published by the Crohn´s & Colitis Foundation of America.

Crohn´s & Colitis Foundation of America

    386 Park Avenue South, 17th floor
    New York
    NY 10016-8804
    USA
    Supports basic and clinical research on a cure and treatment for Crohn´s disease and ulcerative colitis.
    Email: info@ccfa.org

The J-Pouch Group

    The first site on the web dedicated to the Ileo-anal anastomosis, or "J-Pouch" operation. Join us for support and information regarding this procedure. We have lots of plans to bring you the most information possible as you plan for the operation or are dealing with life after suffering with Ulcerative Colitis or familial polyposis.

    P.O.Box 434
    Hatboro, PA 19040-0434
    USA

Pediatric Crohn´s & Colitis Association Inc.

    P.O. Box 118
    Newton
    MA 02168
    USA

Reach Out for Youth with Ileitis and Colitis Inc.

    15 Chemung Place
    Jericho
    NY 11753
    USA

United Ostomy Association Inc. (UOA)

    36 Executive Park, Suite 120
    Irvine
    CA 92714
    USA
    Email: uoa@deltanet.com

American Liver Foundation (ALF)

    1425 Pompton Avenue
    Cedar Grove
    NJ 07009
    Promotes awareness and supports research on liver disease, disseminates information about liver wellness, liver disease, and prevention of liver disease.
    Email: info@liverfoundation.org

Children’s Liver Alliance Inc. - USA

    3835 Richmond Avenue, Suite 190
    Staten Island, NY 10312-3828 USA
    Telephone/Fax: (718) 987-6200
    E-Mail: Livers4Kids@earthlink.net

The Hemochromatosis Foundation Inc.

    P.O. Box 8569
    Albany
    NY 12208
    USA
    Provides information to the public, families and professionals about hereditary hemochromatosis

Iron Overload Diseases Association Inc.

    433 Westward Drive
    North Palm Beach, FL 33408
    USA
    Email: ladyiron@aol.com

Hemochromatosis Foundation fo Arizona (HFAZ)

    8743 E. Valley Vista
    Scottasdale
    AZ 85250
    USA


The Copper Connection is published by Wilson´s Disease Association

Wilson´s Disease Association

    Attn: Kimberly Symonds
    1802 Brookside Drive
    Wooster, Ohio 44691
    USA

Hepatitis Foundation International (HFI)

    30 Sunrise Terrace
    Cedar Grove
    NJ 07009-1423
    Fosters worldwide awareness about the prevention, diagnosis and treatment of viral hepatitis
    Email: mail@hepfi.org

Hepatitis B Coaliation

    Immunization Action Coalition
    1573 Selby Avenue, Suite 229
    St. Paul, MN 55104-6328
    Email: editor@immunize.org

Hepatitis B Foundation

    101 Greenwood Avenue
    Suite 570
    Jenkintown, PA 19046
    USA
    Provides support and education to people affected by hepatitis B and dedicates itself to eliminationg hepatitis B though community education and cure research programs
    Email: info@hepb.org

Hep C Connection

    A National Hepatitis C Network and Support System
    HCConnection
    1177 Grant St, Suite 200
    Denver CO 80203
    USA

American Porphyria Foundation

    P.O. Box 22712
    Houston
    TX 77227
    USA
    Advances awareness, research and treatment of the porphyrias, provide sel-help services for members and provides referrals to porphyria treatment specialists.


APHS publications

American Pseudo-Obstruction and Hirschsprungs´s Disease Society Inc (APHS)

    158 Pleasant Street
    North Andover
    MA 01845-2797
    USA
    Email:aphs@mail.tiac.net

Sjogren´s Syndrome Foundation

    333 North Broadway
    Jericho
    New York 11753
    USA

International Foundation for Functional Gastrointestinal Disorders (IFFGD)

    The International Foundation for Bowel Dysfunction (IFBD) is a nonprofit organization which addresses the issues surrounding live with functional bowel disordes. For more information:
    P O Box 17864
    Milwaukee, WI 53217
    Email: iffgd@iffgd.org

The IBS Support Group for Southern California

    P.O.Box 64652
    Los Angeles
    CA 90064
    USA
    Email: fbrown627@rocketmail.com


The Lifeline Letter is published by the Oley Foundation

The Oley Foundation

    "Living with home parenteral and/or enteral nutrition (HPEN)"
    214 Hun Memorial
    Albany Medical Center, A-23
    Albany, NY 12208
    USA

The National Pancreas Foundation

    P.O.Box 600590
    Newtonville
    MA 02460, USA
    The National Pancreas Foundation was founded by two families, whose lives forever changed by the devastation of pancreatic cancer and chronic pancreatitis. It is a non profit organization, which aim at supporting the research of diseases of the pancreas and providing informatiohn to those who are suffering from pancreatic diseases.

American Society of Adults with Pseudo-Obstruction Inc. (ASAP)

    19 Carroll Road
    Woburn, MA 01801
    USA
    Email: asapgi@sprynet.com

Alagille Syndrome Alliance

    10630 SW. Garden Park Place
    Tigard, OP 97223, USA
    Provides a support network for children, their parents and others with Alagille syndrome

Cyclic Vomiting Syndrome Association (CVSA)

    An organization for patients, families and professionals providing support and education for Cyclic Vomiting Syndrome and research support for nausea and vomiting
    35985 Cedar Hill Rd. NW

    USA
    Ca nal Winchester, Ohio 43110
    USA
    Email:kadams@post.its.mcw.edu

Pediatric/Adolescent Gastroesophageal Reflux Association Inc.

    P.O. Box 1153
    Germantown
    MD 20875-1153
    USA
    Email: GERGROUP@aol.com


Gastro-Intestinal Research Foundation

    70 East Lake Street
    Suite 1015
    Chicago
    IL 60601-5907
    USA
    Supports research and training programs at the University of Chicago Medical Center.

Digestive Disease National Coalition

    507 Capitol Court NE
    Suite 200
    Washington
    DC 20003
    USA

Food Allergy Network

    10400 Eaton Place
    Suite 107
    Fairfax
    VA 22030
    USA
    Email:fan@worldweb.net

National Organization for Rare Disorders, Inc

    "... out of the darkness into the light..."
    P.O.Box 8923
    New Fairfield
    CT 06812-8923
    USA

National Digestive Diseases Information Clearinghouse

    2 Information Way
    Bethesda, MD 20892-3570
    USA
    Email: nddic@info.niddk.nih.gif
    The National Digestive Disases information Clearinghouse (NDDIC) is a service of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK). the NIDDK is part of the National Instutues of Health under the U.S. Public Health Service. Established in 1980, the clearinghouse provides information about digestive diseases to people with digestive disorders and to their families, health care professionals, and the public. NDDIC answers inquiries; develops, reviews, and distributes publications; and works closely with professionals and patient organizations and Government agencies to coordinate resources about digestive diseases. - Publications produced by the clearinghouse are reviewed carefully for scientific accuracy, content and readability.

AA (Anonymous Alcoholics)

    A.A. General Service Office
    475 Riverside Drive
    New York, NY 10015
    USA

Internatinal Food Information Council

    1100 Connecticut Avenue N.W., Suite 430
    Washington D.C. 20036
    USA
    Email: info@ific.org

Food for Life Global

    International Vegetarian/Vegan Food Relief Organization
    Paul Turner (Priya)
    10310 Oaklyn Drive
    Potomac
    MD 20854
    USA
    Email: Priya.ffl@com.bbt.se


Digestive Health and Nutrition is published by the American Gastroenterological Association

American Gastroenterological Association

    7910 Woodmont Ave, 7th Floor
    Bethesda, MD 20814
    USA

American Society for Gastrointestinal Endoscopy

    13 Elm Street
    Manchester
    01944 Massachusetts, USA


Diseases of the Colon & Rectum is the official journal of the American Society of Colon and Rectal Surgeons.

The American Society of Colon and Rectal Surgeons

    85w. Algonquin Road, Suite 550
    Arlington Heights
    Illinois 60005, USA

Oncology Nursing Society

    125 Enterprise Drive
    Pittsburgh, PA 15275-1214
    USA
    Phone: 412-859-6263
    FAX: 412-859-6164
    Email: customer.service@ons.org

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August 23, 2007